For general information or questions on the EVA program:

216-285-4061

   

Join our patient registry to help us learn more about EVA

Despite being a common cause of hearing loss in children, there has been very little research done on enlarged vestibular aqueduct syndrome, or EVA. Currently, there are no treatments to prevent or reverse EVA-related hearing loss, and doctors are unable to provide parents with clear guidelines on everyday activities.

The uncertainty that many parents face after their child is diagnosed can be overwhelming, and we want to help alleviate this through our EVA patient registry.

By signing up for our patient registry and sharing your own experiences with EVA, you can help us find answers not only for your own child, but for other families affected by EVA.

We hope that by collecting your information and that of others, we will be able to provide physicians with the knowledge that their patients need, and parents with the information that their child deserves.

We hope to answer questions such as:

  • Can swimming and playing sports affect children with EVA?
  • Can flying in an airplane cause or worsen hearing loss?
  • How does EVA affect a child’s balance?
  • Should steroids be given for concussions in EVA patients?

We welcome you to join our efforts by signing up for our registry. With your help, we hope to find answers for families affected by EVA and hearing loss.

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